Developing meaningful public involvement in a cancer clinical trials unit
نویسندگان
چکیده
Background Public involvement in clinical trials has developed rapidly and is now expected by funders, research ethics committees, researchers and members of the public. Despite benefitting the research, researchers and public members involved, public involvement can be challenging and tokenistic. For several years, a cancer clinical trials unit (CTU) in Wales, in association with a government funded public involvement organisation, has made serious efforts to meaningfully and appropriately include members of the public across all its clinical trials.
منابع مشابه
The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit’s model
The importance of involving lay representatives in research is well-recognized but is not consistently meaningfully practiced or reported. Although the positive outcomes of lay representative involvement can include more relevant research questions and outcomes, challenges are also apparent, including tokenistic involvement by research teams. A Cancer Research UK-funded and National Cancer Rese...
متن کاملA mapping and gapping analysis of patient and public involvement in a clinical trials unit
Patient and public involvement (PPI) in research involves the active contribution of members of the public in research studies and within research organisations. PPI is important in ensuring the relevance and quality of general health care research. Funders often now request evidence of prior and future planned PPI in health research. The University of Liverpool Clinical Trials Research Centre ...
متن کاملTACT: Research Partner involvement in a cancer clinical trials unit and academic research centre; evaluating its impact
Background Since 2005 lay representatives (‘Research Partners’ – RP) have been involved in the work of a clinical trials unit and academic research centre. Their roles can include attending trial management groups, reviewing documents and chairing and presenting at sub-committees. Where recruitment of RPs was once opportunistic, RPs are now more formally recruited in conjunction with a national...
متن کاملA patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials – a work in progress
PLAIN LANGUAGE SUMMARY Funders of research are increasingly requiring researchers to involve patients and the public in their research. Patient and public involvement (PPI) in research can potentially help researchers make sure that the design of their research is relevant, that it is participant friendly and ethically sound. Using and sharing PPI resources can benefit those involved in underta...
متن کامل“How should we treat older patients with Metastatic Colorectal Cancer, A Review”
Nearly 50 % of newly diagnosed colorectal cancer, affect people over 70 years of age. Inclusion of older patients in clinical trials has been extremely rare. As a result, there is debate on how to manage these patients because it is still unclear how to balance the therapeutic advantages and toxicities. For patients who do not have comorbid conditions, with performance status (P.S.) 0–1, treatm...
متن کامل